EVERY BODY IS DIFFERENT:
This holds true in both relapsing remitting forms of the illness and in progressive forms. However, in very advanced MS, symptoms begin to converge and certain commonalities emerge.
If everyone is very different, does it make sense to treat everyone the same? Do you want to be prescribed a powerful drug because a few thousand people in a different part of the world showed signs of responding to it? In progressive MS, this conundrum is not even an issue, because presently there are no treatments for a disease that simply won't get better on its own. In this way, aren't people with progressive MS who are actually a completely heterogeneous group being labelled as one great undifferentiated mass?
A diagnosis of progressive MS can mean that the physician sees only a label instead of a unique human being, and that label may prevent them from expecting anything other than an unpredictable rate of decline. In the absence of a standard drug treatment the physician may have low expectations for the patient and may focus (if they focus at all) on symptom management and accommodating disability, but even this may be done in an ad hoc way.
It is the premise of this site that every person with progressive MS would not want anyone else to go through what they are experiencing, that they do not wish to feel abandoned, and that they are a precious resource where the underlying disease process is unfolding on a daily basis, and that they deserve a better model of care; one that is based on keeping an open mind, examining the person head to toe and inside out, correcting imbalances, deficiencies and dysfunction in every bodily system, and treating co-morbidities with a view to maximising health and quality of life in all dimensions.
Because... Every body is different!
TIME IS OF THE ESSENCE:
- Every body is different, so;
- No two people will have the same symptoms
- No two people will experience the same disease course
- MS is totally unpredictable
This holds true in both relapsing remitting forms of the illness and in progressive forms. However, in very advanced MS, symptoms begin to converge and certain commonalities emerge.
If everyone is very different, does it make sense to treat everyone the same? Do you want to be prescribed a powerful drug because a few thousand people in a different part of the world showed signs of responding to it? In progressive MS, this conundrum is not even an issue, because presently there are no treatments for a disease that simply won't get better on its own. In this way, aren't people with progressive MS who are actually a completely heterogeneous group being labelled as one great undifferentiated mass?
A diagnosis of progressive MS can mean that the physician sees only a label instead of a unique human being, and that label may prevent them from expecting anything other than an unpredictable rate of decline. In the absence of a standard drug treatment the physician may have low expectations for the patient and may focus (if they focus at all) on symptom management and accommodating disability, but even this may be done in an ad hoc way.
It is the premise of this site that every person with progressive MS would not want anyone else to go through what they are experiencing, that they do not wish to feel abandoned, and that they are a precious resource where the underlying disease process is unfolding on a daily basis, and that they deserve a better model of care; one that is based on keeping an open mind, examining the person head to toe and inside out, correcting imbalances, deficiencies and dysfunction in every bodily system, and treating co-morbidities with a view to maximising health and quality of life in all dimensions.
Because... Every body is different!
TIME IS OF THE ESSENCE: